Josh has chronic leukemia. I need to remember this. This will be a lifelong marathon the we will figure our stride to. I say this because Josh's treatment took a backwards step the past few days. As I said in the past blog post his first two rounds of Tasigna made him violently ill, gave him a massive headache, nose bleeds and dehydrated etc....we were not expecting that at all. We were ready for some mild reactions like itchy scalp, rash, or mild headache. Clearly something was off. Josh was sicker yesterday than he has ever been through this whole cancer process and was very close to being admitted into the ER again. After many conversations with the doctor we have decided to slow down. We are going to very slowly introduce tasigna into Josh's system.
He had a full 36 hours without the cancer medication and we've filled his system with antinausea and heartburn meds continually. Tonight he took half his usual dose of tasigna. We are hoping that the back up of Zofran and Prilosec in his body will help him do better tonight. If all goes well, he will get another half dose Sunday morning. Slowly we are going to see how his body reacts. We are all praying that we can find the right dosage soon and get moving on recovery. Lets hope we all sleep well tonight!
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